New Lupus Diagnosis here! What were your symptoms and what are your best remedies?4yr ⋅ JBlubsDC ⋅ r/lupus
Does anyone’s butterfly rash look similar to this? It burns and when I feel my cheek it is really hot.3yr ⋅ Single_Discipline_96 ⋅ r/lupus
We could replace getting older with having an autoimmune disease......so true! 🙄5yr ⋅ RubyRosesMomma ⋅ r/lupus
new symptom!! my mom as well as other family members have been diagnosed with lupus, hashimoto’s, etc. did anyone else experience finger swelling and pain before their diagnosis?2yr ⋅ woodyharrelsonluvr ⋅ r/lupus
Made it through a whole week at work, 3 workouts and no naps after work. Celebration brownie for me!! :) Me 1-0 Lupus6yr ⋅ BananaJelly13 ⋅ r/lupus
Got 200 units of botox injected to see if it'll help with raynauds phenomenon2yr ⋅ snazarella ⋅ r/lupus
Is this true? Has anyone experienced this with their bladder or urinary track?2yr ⋅ ashlyrind7 ⋅ r/lupus
Prepping for my specialist appointment - here's my list of symptoms since around October time, what meds have worked for you? (I've been through: hydroxychloroquine, methotrexate, and mycophenolate)2yr ⋅ ApprehensiveStreet85 ⋅ r/lupus
I have heard from many sources that it should be 5mg per 1kg of weight and I am 48kg... does anyone know what the effects are of being on too high of a dose?1yr ⋅ Winter-Finding4541 ⋅ r/lupus
Taped my knees the way my physical therapist showed me for the first time during a flareup~5yr ⋅ bree_cheese- ⋅ r/lupus
MRW my immune system attacks my joints while the flu rampages through my body7yr ⋅ hasawasa22 ⋅ r/lupus
Finger bumps... anyone have these? They sometimes hurt and come and go, but slightly change locations. So far only on my right pointer and middle finger3yr ⋅ Yetugs ⋅ r/lupus
Anyone notice any improvements by going gluten free? there seems to be a contradiction when you ask google 😂3yr ⋅ Ashleyh87 ⋅ r/lupus
Can someone please advise if this looks like a lupus rash? I am booked in with my doctor next week.4yr ⋅ Albieroo ⋅ r/lupus
Hate when this happens. Daily thing. It gets so hot and painful. Any suggestions other than cold compressions?4yr ⋅ kittycaviar ⋅ r/lupus
Only took 5 weeks to be declared sick enough to be hospitalised. Got there in the end. Wish me luck with the Rheumatologist!5yr ⋅ BananaJelly13 ⋅ r/lupus
Been experiencing lupus like symptoms but my ANA test reflects Negative. Anyone has had a similar experience? And what did you end up doing/ testing/ getting diagnosed for?2yr ⋅ JuanSkinFreak ⋅ r/lupus
i am sooo devastated. i just cried for like 2 hours lol. I have discoid lupus. Anyone know how to have my hair grow back?2yr ⋅ gonesabbatical ⋅ r/lupus
“Without a struggle there can’t be progress, even though the weight is crushing me. Without a struggle there can’t be progress, aim to kill, fight defeat.”4yr ⋅ tauredi ⋅ r/lupus
Has anyone with lupus nephritis taken this medication? My Rheumatologist gave me this out of the office yesterday.2yr ⋅ XerxesTheMarmoset ⋅ r/lupus
Wondering if anyone else has had this? Already diagnosed with SLE but had the same rash on both hands when originally diagnosed.2yr ⋅ natasha218265 ⋅ r/lupus
everyday a different joint in my body hurts. today it’s the distal interphalangeal joint (which i just googled). it’s funny because tomorrow they’ll be perfectly fine and another random joint will be hurting *excited to discover which one it will be!*5yr ⋅ oyuu2000 ⋅ r/lupus
Mfw the blood specialist starts pulling out dozens of viles for my ripe veins to fill6yr ⋅ EstateAnime ⋅ r/lupus
When you spent all of today's spoons yesterday cleaning the house... and your SO brings you cookies. <3 my hero ^_^6yr ⋅ BananaJelly13 ⋅ r/lupus
Has anyone else here experienced these spots on their skin? These are between my chest and stomach, but I have them everywhere.4yr ⋅ Butch1234 ⋅ r/lupus
Speechless. My friends banding together to find me a match. The lupus started attacking my kidneys and now I’m in acute renal failure and I’m starting dialysis. I am so thankful for these people.5yr ⋅ PM_ME_YOUR_KINKAJUS ⋅ r/lupus
(Diagnosed with SLE) - a circular mark appeared on my face the last few days. Is this cutaneous lupus? Has anyone had this before? I always have skin issues but never this.1yr ⋅ expialidocioussuper ⋅ r/lupus
Does anyone else suffer with red raised lumps on their hands? Sore and painful. Don't know if it's Lupus and/or Fibro related...5yr ⋅ BananaJelly13 ⋅ r/lupus
What are these red marks on my toes? I know they’re lupus related but don’t know what it’s called. Always happens on my toes.2yr ⋅ notlarrykingg ⋅ r/lupus
do you guys have an elevated protein level? how high is yours if you’ve been diagnosed lupus nephritis? (i will talk to my rheumy ofc, but i’m just curious)2yr ⋅ geminimoon69 ⋅ r/lupus
Does anyone else get these kind of veins (Livedo racemosa) in their legs or arms?1yr ⋅ adurango ⋅ r/lupus
For years I thought my pink cheeks post-shower was just a healthy glow. I'm still amazed, now that I have my diagnosis, at how much I was just ignoring or dealing with.5yr ⋅ AuDBallBag ⋅ r/lupus
Which plan would you choose? I see a nephrologist, hematologist, and rheumatologist regularly. Just want to make the smartest choice when it comes to choosing new health plan1yr ⋅ Regular-Ad4200 ⋅ r/lupus
Myrtle Mae-med filling specialist!! 👍❤ She enjoys playing with the bottle caps while my husband and I fill up the days!!5yr ⋅ meowganacusick ⋅ r/lupus
My butterfly rashes make my face feel hot and awful so I use Lush face scrubs to cool it down, anyone else got similar tips and tricks for feeling better?6yr ⋅ JinxQuinn ⋅ r/lupus
Having a rest after a shower, and just being a peace that hairy legs exist.5yr ⋅ BananaJelly13 ⋅ r/lupus
Plaquenil (Hydroxychloroquine) and hair whitening/lightening — has anyone else had this happen?4yr ⋅ tauredi ⋅ r/lupus
Upper bicep tendon tear bruising result seen here. 8 years with rare version of Lupus called HUV as well as SLE. On oxygen 24/7 not physically active. Third tendon to tear in last 6 months. No new meds. Im scared and worried I’m finally falling apart. Anyone have any advice or similar story? Thanks5yr ⋅ LiveBaconStrong ⋅ r/lupus
First time self-tanning. Currently praying to St. Tropez for guidance. Who else has dabbled?5yr ⋅ AuDBallBag ⋅ r/lupus
When you think maybe you could lower your dose of meds but you know your immune system too well.7yr ⋅ MyLast_Duchess ⋅ r/lupus
APS people!!! Didn’t know how to post a pic to today’s existing chat but check out these sweet compression socks I got.5yr ⋅ Crabbyappletonn ⋅ r/lupus
I was worried about getting an outdoor job in the sun, but my fears were abated thanks to my hat, long sleeves, and sunscreen. Then this happened.6yr ⋅ Stewbodies ⋅ r/lupus
Forgive my appearance guys, I’m waiting on my appointment to confirm what a couple of my doctors suspect is Lupus, I finally got a decent picture of one of the rashes, to a community of people who got a diagnosis I’d find immense peace of mind in your opinion. ❤️5yr ⋅ CatsReactToMe ⋅ r/lupus
Has anyone had this rash?? Not helped by steroid cream, doesn’t itch, all over arms, stomachs, & legs. I’ve had it for 3 months now.5yr ⋅ happyyogigirl73 ⋅ r/lupus
My Rheumatologist makes me get a yearly Plaquenil eye exam...does yours?5yr ⋅ Imyrbestfriend2 ⋅ r/lupus
Not a great example of it, but this is the redness that appears on my face regularly...7yr ⋅ esmereldaskysurfer ⋅ r/lupus
Flu shot 36 hrs ago..33f, systemic lupus, on meds, some of which are made to prevent and combat fevers. Should I be worried?2yr ⋅ ClautumnL0v3 ⋅ r/lupus
Possible Lupus diagnosis? I’ve had this rash forever but it recently flared up really bad plus I’ve dealt with fatigue, headaches, joint pain, muscle weakness, and it runs in my family. Just wondering what others signs and stories were?5yr ⋅ akg720 ⋅ r/lupus
I’ve always been an “olive person,” and become a ✨goddess ✨ in the summer. This blotchy shit is for the birds.5yr ⋅ Godsammm ⋅ r/lupus
Went to a new dermatologist about my rosacea and she says it looks more like a Lupus rash. Your thoughts?6yr ⋅ shamalongadingdong ⋅ r/lupus
I'm a guinea pig for US! Let's get some new treatments on the market. Wish me luck.9yr ⋅ PawlsToTheWall ⋅ r/lupus
I'm going camping this weekend, but I was worried about sun exposure. The universe decided to cut me a little slack!9yr ⋅ WeekendWerewolf ⋅ r/lupus
I was diagnosed 2 and a half years ago. The first picture was taken my first Christmas post-dx, the second was taken this Christmas.8yr ⋅ queenofstickers ⋅ r/lupus
Does anyone else’s butterfly rash show up when you’ve been out in the sun? (Pic)6yr ⋅ 99healthproblems ⋅ r/lupus
I know y’all don’t like the “is this lupus” questions, but my rheumatologist thought it was Behcets and BAM this comes back. More in comments3yr ⋅ Muffinman1111112 ⋅ r/lupus
For those of you who've ever wondered what Raynaud's looks like. Sorry my nails look like crap.9yr ⋅ thrwaway25 ⋅ r/lupus