thought you guys might find this amusing

4mo ⋅ ⋅

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But really, why is this completely true?!

2yr ⋅

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Meh, I'm used to it.

3yr ⋅

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As a lupus patient for 9 years (diagnosed at age 16), encountering people like this is mentally exhausting, and utterly infuriating.

1yr ⋅

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I can relate (as I'm sure most of you can) to every single f*cking thing here! 🤨😒

2yr ⋅

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Me trying to look up lupus diets

3yr ⋅

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My rheum after I describe my potential lupus symptoms

3yr ⋅

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Ouch my skin hurts

3yr ⋅

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60mg of Prednisone vibes

3yr ⋅

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My boyfriend proposed to me at night under stick on stars after I told him a childhood story about how they have special meaning to me. I've been stuck in a Lupus flare a month and I haven't been able to go out into the sun. So he took my favorite memory and proposed at night. 🌟

10mo ⋅

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Huh... that’s weird.

1yr ⋅

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Happy Lupus Warrior with sun sensitivity after finding a hat with a big enough brim to actually block the sun. Anyone else bothered by the fact that most wide brim hats aren't solid?

3yr ⋅

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This was posted a couple years ago but I thought I’d share again as new people are joining. Lupus or not you’re not alone

1yr ⋅

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Omg, you guys I found the cure for joint pain. 😂

2yr ⋅

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Makeup makes my symptoms worse. I’m finally comfortable going into public without it..and I feel beautiful regardless. No one stares or says anything so give it a try you might be surprised by not only others but yourself too ❤️

2yr ⋅

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my doctor: you're looking very healthy, great test results. meanwhile, me:

2yr ⋅

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In light of recent news

4yr ⋅

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Meme of the day

1yr ⋅

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tired of this

1wk ⋅

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I was nervous about starting Saphnelo, so I painted matching nails to manifest good vibes! Please don't judge my bad cuticles and poor painting skills haha

1wk ⋅

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Anyone else hate filling their weekly pill sorters as much as me? Seeing all the bottles is just depressing too.

2yr ⋅

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Update: I shaved my head due to hair loss from lupus. I honestly have never felt more comfortable in my own skin. : D (I also have a wig for work)

4yr ⋅

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This is perfect

3yr ⋅

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Our kind of party!

6mo ⋅

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Preparing for my Friday Rheumatology appt like:

3yr ⋅

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send help lol

1yr ⋅

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I’m proud of me!

2yr ⋅

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I'm 23 with lupus and I work retail. (:

3yr ⋅

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This is kind of embarrassing for me, but I know that a lot of us on this sub take prednisone and it takes a toll on our mental health due to all the side effects. This is to show anyone who’s worried about a moon-face appearance that it *does* go away and you *will* feel better 💜

1yr ⋅

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Me after a year of autoimmune struggles, with 4+ months of prednisone and methotrexate

2yr ⋅

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Just summing it up this week

2yr ⋅

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I just got my 3rd shot and I'm so excited I had to share!

2yr ⋅

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I’ve been prescribed prednisone once again so I made this meme haha

2yr ⋅

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We got to see our little one today for the first time. It's my first pregnancy and obviously we are high risk due to lupus and sjogrens but im happy to report we have a little nugget and we are 9 weeks along. I feel very confident in my team and im excited!

4yr ⋅

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Traitor Antibodies

2yr ⋅

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Haha!

2wk ⋅

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Made a cake for an order a while ago and it ended up looking like a lupus cake! Thought the group might enjoy

1yr ⋅

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The struggle :,)

3yr ⋅

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Day 34 in hospital , I just want to have normal life .

3yr ⋅

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When you start your day with only 4 spoons...

3yr ⋅

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🙄

4yr ⋅

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Don't forget how much of a badass you are

2yr ⋅

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Guys.... one of the best pictoral descriptions I've seen!

1yr ⋅

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☀️🥵

4yr ⋅

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Just found this subreddit. I’ve found my people

3yr ⋅

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Sunday special - Benlysta and iced coffee

1yr ⋅

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I’ve been taking oral contraceptive for 18 years and using Nurx since 2019. They just refused to continue prescribing me the pill because of my new diagnosis.

1yr ⋅

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I'm leaving in a week for a cruise. I think I found my swimsuit! 😂

4yr ⋅

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If you haven't met this person yet.... you will

2yr ⋅

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Currently dealing with this lol

4yr ⋅

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lupus sucks.

4yr ⋅

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Another day in bed.. anyone ever have the days where they just lay in bed all day & have such an insane amount of fatigue? Even after a full night of sleep..

4yr ⋅

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there's tired and then there's lupus tired 🥱

2yr ⋅

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I hate shit like this with my entire (barely functioning) body

9mo ⋅

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Waking up every morning playing lupus twister. Today: left index finger and right ankle.

3yr ⋅

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I think our symbol should be bluebonnets because their botanical name is lupines. I made a very rough draft of something I eventually want to paint to represent lupus. Rosy maple moth for pink butterfly rash.

2mo ⋅

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it’s not fair that i have to take these horribly painful benlysta injections for the rest of my life

4mo ⋅

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Started my first injection treatment today & had to make this meme!

4yr ⋅

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Gentle hugs 🤗 My inbox is always open!

1yr ⋅

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Dressed up my “compromised immune system” tshirt- just cause I feel sick doesn’t mean I can’t look cute!

3yr ⋅

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When your healthy friends don't get it 🙃

2yr ⋅

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Everyone should automatically get one of these when they’re diagnosed lol

3yr ⋅

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When that flare hits you out of nowhere

4yr ⋅

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I love meditation, but it is not the answer!

2yr ⋅

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Anyone else have pill fatigue? I’ve been staring at my pills for ages now. I used to be chill with taking pills and now if I’m not “forgetting” to take them, I’m gagging trying to get them down.

1yr ⋅

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My brain MRI showing white matter lesions caused by lupus vasculitis which causes inflammation in the body’s blood vessels. Those white spots are areas where blood flow was restricted to the brain.

4yr ⋅

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Sun burns and lupus don't mix. I even wore sunscreen. Guess, I need to wear full clothing now.

1yr ⋅

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I used to be a runner, but Lupus changed that. I took a lot of time to grieve, but I’m ready to try again. Hopefully between better pain management, PT, and having a treadmill at home, I’ll be able to run again. Trying to find things that make me happy. Thinking of even trying weight lifting.

1yr ⋅

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I'm so super smart you guys

4mo ⋅

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Can we just take a minute to talk about how exhausting constantly switching up meds is? my weight has fluctuated so horribly I don’t even recognize myself anymore

2yr ⋅

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Damn, this hit hard.

1yr ⋅

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LOL

1mo ⋅

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Got a tattoo to cover my hairloss, lmk what y’all think

4yr ⋅

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All my diagnoses after 12 years of lupus

5mo ⋅

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My pills for 1 week! And I have a mild lupus 😥🥹

1yr ⋅

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Remember this pic? My second shot was on Jan 7th. I had my Antibody testing done last week. Just got the results... And we did it! Me and my wonky little immune system managed to make the antibodies!! I am so relieved! Can I get a hallelujah!?

3yr ⋅

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healthy people: you don’t need to wear a mask anymore. Me:

2yr ⋅

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Trying to be cute but my face is on fire

4yr ⋅

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Concerned Husband

4mo ⋅

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In today’s episode of where has my hair gone?

2yr ⋅

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60mg of prednisone got my face feeling like

3yr ⋅

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Nothing infuriates me more than this.

4yr ⋅

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You all enjoyed my meme from yesterday so I present to you: ‘Go try yoga!”

1yr ⋅

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Why us :(

3yr ⋅

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Me trying to figure out which one of my autoimmune diseases is flaring this time....

3yr ⋅

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Does anyone else get this too?

3yr ⋅

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All of you will understand this.... feeling like shit for no reason!

4yr ⋅

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Lupus Vampire Life

4mo ⋅

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completed my pre-vaccine blood work for the Johns Hopkins research study this morning. 1st vaccine scheduled for tomorrow!

3yr ⋅

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Who else gets excited about pill boxes? 💊

1mo ⋅

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The unofficial birthday cake of this sub

3yr ⋅

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Mmm, raw cheek flavor

2yr ⋅

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When you've been feeling like shit and the doctor hits you with the your lab results look stable/normal

3yr ⋅

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*wham!*

1yr ⋅

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Funny and Sad :(

3yr ⋅

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Saw this on insta and had to share.

4yr ⋅

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Praying isn’t gonna stop my disease, Karen.

4yr ⋅

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“Pro life” is not pro life... lupus rights is women’s rights.

2yr ⋅

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Explaining to people what lupus is like be like:

11mo ⋅

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This felt too accurate?

1yr ⋅

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True I guess

4yr ⋅

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Ibuprofen Meme

4yr ⋅

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Not sure if already posted, but this is SO accurate

3yr ⋅

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2020 Fall Fashion! 😂

4yr ⋅

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Tired of it all. Tired of the burning and exhaustion.

2yr ⋅

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Just an average day with random rashes

4yr ⋅

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Ah yes, if only I had thought of that sooner. Why have I been wasting my time with R&R?!

1yr ⋅

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Don’t know who needs this...

5yr ⋅

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unsure why this came into my brain today

3yr ⋅

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After almost 20 years of symptoms, I finally have a diagnosis. I am not happy to have it, but happy to finally be diagnosed and finally start treatment.

1yr ⋅

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Accurate in these sunny days

3yr ⋅

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L is for lupus not lazy

7mo ⋅

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I'm tired

4yr ⋅

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when i open up to a new person about having lupus and they immediately make a house md joke

2yr ⋅

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This may seem like a weird post but I wanted to share some advice on cleaning/vacuuming when you have legit no energy. More in the description..

9mo ⋅

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Now THIS is accurate

4yr ⋅

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THE HUBRIS

2yr ⋅

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This helped me so much, I hope it helps you too!

3yr ⋅

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Anyone else see this? What are your thoughts on it?

1yr ⋅

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FYI for those of you taking Hydroxychloroquine (the generic for Plaquenil).

4yr ⋅

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How long have you been on Benlysta infusions? I’m coming up on my first year. Is this a forever thing? Pic for funsies. Gotta take time to laugh at ourselves, right?

3yr ⋅

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Walgreens just gave me the run-around trying to get my plaquinil refilled

4yr ⋅

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Figured this belonged here

3yr ⋅

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Lupie self portrait - unfinished

4yr ⋅

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Thanks dad!

4yr ⋅

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Understanding

3yr ⋅

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😥😥😥 (this is all in one day)

2yr ⋅

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A little dark... but it’s how I feel today

2yr ⋅

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Wanted to share this, soon I'll share my story.

5yr ⋅

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Dealing with hair loss, and I'm not handling it well. It doesn't look bad here because I used to have A LOT f hair, but this is a lot of missing hair for me. I had to chop 9-10 inches off my hair to make it look thicker and I'm 1000000% over this disease.

3yr ⋅

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Got my 1st vaccine in Saturday. My are was sore Sunday and Monday. No other side affects. Can't wait for the second dose! I am just hoping it will work for me. I take Benlysta so I don't have all of those lovely Bcells to help make antibodies. Fingers crossed.

3yr ⋅

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Do y’all’s hands swell this bad in a flare? I can’t even make a fist, I am so miserable. :’(

1yr ⋅

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Hair loss during a flare vs non flare. Is it normal to only lose hair during a flare?

2yr ⋅

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Glove recommendations? My normal temp hand vs a 10 min walk outside with thick gloves on in 28f weather. I'm tired of grumpy fingers!

3yr ⋅

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For anyone struggling with doctors or a diagnosis, I found this post interesting and worthy of sharing.

3yr ⋅

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I'm in the middle of a flare up, and this is exactly how I feel

4yr ⋅

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Especially #1....

3yr ⋅

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My immune system is like a 5 star hotel for covid

4yr ⋅

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Made this last night because I was depressed and angry about having lupus and feeling so crappy.

6yr ⋅

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If this has been posted before...too bad! I have over a year of photographs of myself that make me angy 🙃

3yr ⋅

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