I’ve caught myself doing this while watching YouTube or TV a lot recently.6yr ⋅ alosercalledsusie ⋅ r/ehlersdanlos
Hammock sleeping solution godsend to reduce pain and injury from sleeping7yr ⋅ jenmdesigns ⋅ r/ehlersdanlos
Does anyone else have problems with their fingernails? Very soft, flakey, and nail varnish chips/peels within 12-24 hours😩3yr ⋅ 1113975722 ⋅ r/ehlersdanlos
I found press on Zebra print nails!! They are short length, so they are actually reasonable to live with! Feeling pretty. :)6yr ⋅ tweeicle ⋅ r/ehlersdanlos
Made me giggle on the way home from a dr appointment this morning6yr ⋅ Hashtag_MaxTheCat ⋅ r/ehlersdanlos
Anyone remember the post I made a few months ago about my little dimetrodon rat maybe having EDS? This time round we decided to get her and her cagemates zebra hammocks 🦓5yr ⋅ ghostsoundz ⋅ r/ehlersdanlos
Who else sat like this all through childhood? Used to slide my kneecaps around all the time as a kid!6yr ⋅ RFishy ⋅ r/ehlersdanlos
Invalidated by the Reddit algorithm. ‘Similar to Ehlers Danlos’. Really???5yr ⋅ befuddledghostie ⋅ r/ehlersdanlos
Does anyone else have prominent eye veins? I've had very visible veins in my sclerae for as long as I can remember and it has recently occurred to me that they might just be the eye equivalent of varicose or spider veins.4yr ⋅ rutabaga5 ⋅ r/ehlersdanlos
So the NHS offer a service for exercise that is tailored to each individual needs. Today I have my first gym session, I'm nervous but excited at the same time5yr ⋅ TheDraco713 ⋅ r/ehlersdanlos
As some of you know, I paint to help cope with my pain. Here's my latest piece... If you enjoy the video, please Subscribe!💗 *(Link to the YouTube video in comments)*3yr ⋅ GiavannaDesigns ⋅ r/ehlersdanlos
Nope! I ended up in a double cast on straight stairs. I think these would finish me off3yr ⋅ Celestial_Light_ ⋅ r/ehlersdanlos
Does anyone else get wrinkly fingers really easily? I literally just brushed my teeth and washed my hands, there was water on them for less than 1 minute.4yr ⋅ stuetel ⋅ r/ehlersdanlos
I am very proud of my DIY mermaid holo nails. I wish I could find compression gloves in cooler colors. #EDSfashion6yr ⋅ bendywhoops ⋅ r/ehlersdanlos
I have my ears stretched to an inch, and I also have hEDS. Regardless of the fact that I never sleep with plugs in, if I wear anything stone for 4+ hours, they are guaranteed to fall out and crack by the end of the day :(4yr ⋅ bill-purray ⋅ r/ehlersdanlos
Didn’t realize there was anything wrong with how he moved his leg until I browsed the comments6yr ⋅ teenytinybaklava ⋅ r/ehlersdanlos
Please help! has this rheumatologist just officially changed my diagnosis?2yr ⋅ Pompompurinpom ⋅ r/ehlersdanlos
Portrait of EDS legs, my finger is pointing to where my patella is resting, totally dislocated (they both dislocate at rest). And there's usually more bruises! How on Earth did i ever think this was normal???5yr ⋅ Beaglescout15 ⋅ r/ehlersdanlos
Ah to be young again. How many of you were in gymnastics/ballet as a kid?6yr ⋅ RFishy ⋅ r/ehlersdanlos
I finally got a cane after needing one since October — doing it in style of course5yr ⋅ Eeveelutionist03 ⋅ r/ehlersdanlos
The back, for those wanting to make their own. I wound my wire around an appropriate sized marker and then bent it to shape on my finger.6yr ⋅ Cissychedgehog ⋅ r/ehlersdanlos
Container for prescription medications that isn’t so difficult to open? I can’t open these without extreme effort and pain, ugh.3yr ⋅ PinkFancyCrane ⋅ r/ehlersdanlos
Wow it feels weird for my fingers to be straight. Still getting used to the decreased range of motion (well what's meant to be the normal range of motion)3yr ⋅ Playoooooo ⋅ r/ehlersdanlos
Took some personally and leadership assessments for work... and was ranked in the 0th percentile for for energy level. The interpreter (jokingly) asked if i had a pulse. Nope, just the lifestyle and limitations of a regular hEDSer!6yr ⋅ DamnItHardison ⋅ r/ehlersdanlos
I did a full Look only to fall in public 4 times because my left ankle suddenly won’t stay in. I just wanted to show y’all my makeup though. I’m so embarrassed.5yr ⋅ jedgica ⋅ r/ehlersdanlos
any household items that would work rather than purchasing this?1yr ⋅ helmetvonroopuff ⋅ r/ehlersdanlos
Just got home from shoulder surgery! Very bad nausea from anesthesia but overall not too bad, labrum tear fix, debridment, and capsular tightening .4yr ⋅ waybackbruh ⋅ r/ehlersdanlos
Always love trying to find new ways to keep my shoulder from subluxing and get the swelling down. Lol6yr ⋅ afrogirl44 ⋅ r/ehlersdanlos
Thought smart and brought a sketchbook to the ER today. Yay Type IV. Everyone, meet Willis. Willis is based off the Circle of Willis, which is a diagram of the arteries that supply blood to the brain.7yr ⋅ cryptix500 ⋅ r/ehlersdanlos
Anyone ever tried Thrive Tape before? My PT says it's good for those with EDS. Have no idea but hope it helps3yr ⋅ Broccoli_Yumz ⋅ r/ehlersdanlos
Fingernail lifting - onycholysis - any suggestions to help them grow?9mo ⋅ Accurate_Employee533 ⋅ r/ehlersdanlos
I realized my body is like one of these and it made me laugh hysterically by myself. Thought y'all might like it.9yr ⋅ SatanMD ⋅ r/ehlersdanlos
This seems so relevant to EDSers. [x-post from r/TrollXChromosomes]7yr ⋅ sesquipedalean ⋅ r/ehlersdanlos
Should I show my rhuematologist this. Been waiting 8 months now, just want the proper diagnosis. (No pain, I can barely feel it)2yr ⋅ Lukavis ⋅ r/ehlersdanlos
When your skin is so fragile your Apple Watch has left a permanent scar 😫6yr ⋅ RobertYoloMugabe2k12 ⋅ r/ehlersdanlos
Does anyone else get weird itchy lumps like this, seemingly at random times? I can never pinpoint what causes them but they're all over my hands. I get them all around most joints, actually.6yr ⋅ ghostsoundz ⋅ r/ehlersdanlos
Another day, another severe subluxation. My 8yo was crying and scared my foot was gonna fall off, but no, mommy is just special. -_-3yr ⋅ MsMoongoose ⋅ r/ehlersdanlos
EDS/Marfan facial features, does anyone else have a really flat face?5yr ⋅ waybackbruh ⋅ r/ehlersdanlos
When you have to go for walks to improve your circulation but it’s winter so this happens (despite thermal boots and double layer wool socks) and now you’re confused about the whole “improves circulation” thing your doctor said but hey at least your painful foot is now totally numb 🤷♀️5yr ⋅ [deleted] ⋅ r/ehlersdanlos
Does anyone know of a more attractive alternative to the thumb and wrist splint I have to use? Pictures and further information about my issues below. Thank you!4yr ⋅ PinkFancyCrane ⋅ r/ehlersdanlos
Looking for any EDS/HSD insight/experience with ciprofloxacin used externally and not as an oral antibiotic.1yr ⋅ Set_to_W_for_Wumbo ⋅ r/ehlersdanlos
I'm confused. Two physiotherapist so far told me that I'm hypermobile. I have pain in my neck, shoulders, back and knees. Even though I'm exercising regularly and trying everything, my pain doesn't go away, but my doctor told me that there is nothing to worry about hypermobility. I'm just so tired.3yr ⋅ still_bilge ⋅ r/ehlersdanlos
Zebras with neck and shoulder problems what pillows do you use? Need suggestions please1yr ⋅ AliEffinNoble ⋅ r/ehlersdanlos
So much for the tape the PT put on my shoulder to stabilize it...sigh. I really liked it too.4yr ⋅ WreakingHavoc640 ⋅ r/ehlersdanlos
Anyone else experience petechiae for no reason? These spots showed up randomly on my leg and I think they may be petechiae but I’m not sure because this has never happened to me before. I’ve had them for a few weeks with no progression, and they don’t hurt or itch.2yr ⋅ Apprehensive-Ad7703 ⋅ r/ehlersdanlos
Have a question about this posture. Question will be in the comments.2yr ⋅ zebra-eds-warrior ⋅ r/ehlersdanlos
Who else here likes metal and tats? I find my healing times are a bit longer. What is your experience? (vEDS)4yr ⋅ TonChouChou ⋅ r/ehlersdanlos
What causes this? I've asked my docs but they don't even know what to say. My fingers get stuck stiff like that after holding something for a while. This time it was a cereal bowl, and only unstick if I pull them open, then they ache but are fine otherwise.5yr ⋅ saftey_dance_with_me ⋅ r/ehlersdanlos
That moment you realise that your entire bicep is one big stretch mark.4yr ⋅ -Fateless- ⋅ r/ehlersdanlos
It's big and heavy and hot, but my cast has helped eased my pain so much - I now just feel like a turtle in my shell.6yr ⋅ itsuckstogrowup ⋅ r/ehlersdanlos
Has anyone had a purple spot like this? have no idea what it is. all i have done was a heavy leg workout yesterday. as you can see i have visible veins and spider veins on my legs1yr ⋅ EntertainmentDry7252 ⋅ r/ehlersdanlos
I met the talented @nathklotter, an illustrator with EDS in this subreddit. She drew this for me and I couldn’t love it more. #EDSAwarenessMonth6yr ⋅ bendywhoops ⋅ r/ehlersdanlos
Who else gets this? This is my leg. The bit that’s rash like was in the sun for 4 minuets, the part that’s clear was in the shade...6yr ⋅ [deleted] ⋅ r/ehlersdanlos
PSA: giant stuffed animal season is also cute body pillow season (details in comments on how supportive this silly camel is)6yr ⋅ lovelylayout ⋅ r/ehlersdanlos
Recently my fingers keep getting stuck like this more and more frequently, would finger splints help?5yr ⋅ lilBloodpeach ⋅ r/ehlersdanlos
Does Anyone Else Get This Odd Coloration and Bruising On Their Hands? (EDS3&POTS)5yr ⋅ skyfully ⋅ r/ehlersdanlos
Advice request! Thumb inverts at MCP joint when writing and gaming...Does anyone else with this issue have advice regarding splints that have worked for you?4yr ⋅ onthemotorway ⋅ r/ehlersdanlos
Opinions on this type of support? Will these help with dislocating a weakness? I skate and do a lot of physical stuff and having to bring bulky braces is inconvenient, plus they always eventually crease in the back of the knee area making them unbearable.2yr ⋅ sugarapplepie ⋅ r/ehlersdanlos
When painting is the only thing that kept me sane this year after EDS diagnosis. I'm kind of proud of my progression!6yr ⋅ regular-lurker ⋅ r/ehlersdanlos
Hot, red rash on hands every afternoon/evening. Is this a sign of POTS, MCAS, or my Raynaud's?3yr ⋅ Colibri2020 ⋅ r/ehlersdanlos
My friend looked at me like I was a zebra or something (IT WAS COMFORTABLE OKAY??)5yr ⋅ whaleshark5 ⋅ r/ehlersdanlos
Had my first Fulkerson’s Osteotomy yesterday! Pretty crazy that I was diagnosed with hEDS in April and just 6 months later have my first surgery under my belt lol. Happy to answer any questions for anyone interested!3yr ⋅ audit_thot ⋅ r/ehlersdanlos
This cracked me up and made me think of our community. xpost /r/adviceanimals8yr ⋅ BrutalHonestyBuffalo ⋅ r/ehlersdanlos
so i just posted about another weird body thing but i need to address this too. random red splotches???? and it always appears after a shower but it will also appear randomly v often.4yr ⋅ HumbleDesk ⋅ r/ehlersdanlos
I don’t know how common this is but, I can pull my thumb all the way onto the back of my hand.5yr ⋅ vmprbbbt ⋅ r/ehlersdanlos
Any other zebras bruise this badly from bug bites, or should I get my bloodwork checked again?6yr ⋅ emariesaywhat ⋅ r/ehlersdanlos
My meds tho...just another part of my nightly ritual. My grandmother was both horrified and impressed that I can swallow all of these at once. Talent.7yr ⋅ FangirlOverlord ⋅ r/ehlersdanlos