I get stopped in public all the time with questions about my legs. May as well make some money off if it, right?3yr ⋅ _EmmaRose_ ⋅ r/ehlersdanlos
Resonated with this, how do you explain your chronic illnesses to others?1yr ⋅ renaart ⋅ r/ehlersdanlos
I got myself a cake about it after finally getting diagnosed yesterday!1yr ⋅ goldkirk ⋅ r/ehlersdanlos
It’s officially EDS & HSD Awareness Month! Here’s some art I made in celebration, based on one of my new mobility aids1yr ⋅ renaart ⋅ r/ehlersdanlos
My dash zebra melted and it's honestly a great representation of how I feel2yr ⋅ flabbycatjiggles ⋅ r/ehlersdanlos
My very senior, very arthritic dog has discovered the EDS essential dual-function joint/ emotional support Squishmallow. It’s his now, obviously1yr ⋅ sab98xx ⋅ r/ehlersdanlos
Drew myself in my wheelchair and splints. Its taken a while to not feel ashamed of my bad days where I struggle to walk. I’m proud now.1yr ⋅ renaart ⋅ r/ehlersdanlos
I thought the get it comedy as a crutch joke was hilarious in the new spider verse movie but then I realized that it was made by none other than Charlotte Webber or sun spider the spider person with EDS and mobility aids!11mo ⋅ Lesbian_communist ⋅ r/ehlersdanlos
Didn’t really care that I (40m) deal with cEDS. Decided to be a power lifter anyways1yr ⋅ SedimentSock82 ⋅ r/ehlersdanlos
I showed these electron microscopy images of collagen to a friend and she said wow, it's amazing you can function at all if you're built like THAT throughout your ENTIRE body2yr ⋅ HoneyBun21222 ⋅ r/ehlersdanlos
This except for, age has nothing to do with it haha. What’s the most embarrassing injury you’ve gotten?1yr ⋅ National_Square_3279 ⋅ r/ehlersdanlos
Sure Jan... I'm sure the majority of you can relate to this. My old doctors favorite statement for any issue was your body just doesn't like you.3yr ⋅ drakiedoodle ⋅ r/ehlersdanlos
An oil painting I made celebrating the beauty & function of ring splints 💕 our splints & aids are incredible1yr ⋅ cheyennewyntar ⋅ r/ehlersdanlos
Wanted to make my AFO’s less sad and medical looking, so I gave them a makeover!1yr ⋅ Fubsy41 ⋅ r/ehlersdanlos
What does your pain typically look like on the pain scale? How consistent is it?3mo ⋅ trinitysmile12 ⋅ r/ehlersdanlos
I drew an EDS-themed Valentine for the fellow zebra in my life and thought I’d share it here if anyone else wants to print it out and use it! Works great for Galentines, too :) Might need to click on it to make it big. Enjoy!1yr ⋅ Grae96 ⋅ r/ehlersdanlos
Is anyone else excited about this? I can relate to a superhero now!11mo ⋅ Otaku1701-01 ⋅ r/ehlersdanlos
Going to bed with a carpal tunnel braces, cubital tunnel braces, a pregnancy pillow for my back, and kinesiology tape all over my body2mo ⋅ dropdeadtrashcat ⋅ r/ehlersdanlos
Medical gaslighting at its finest. Just saw this note today from October and this is when I brought up to my PCP the possibility of HEDS and wanting to try low dose naltrexone for hashimotos thyroiditis. Definitely will be getting a new PCP this year.1yr ⋅ georgiapeach90 ⋅ r/ehlersdanlos
Cursed image but... is anyone else super thankful for the ability to “Asian squat”?? No seat no problem, plus it makes camping a breeze.1yr ⋅ NovaScotia500 ⋅ r/ehlersdanlos
“intrusive thoughts // why am i stuck in this body?” an art piece i did in a recent flare up2yr ⋅ oofmeup69 ⋅ r/ehlersdanlos
Commissioned on of my friends from AIT to make this lovely cross stitch for me and figured yall would appreciate it lol3yr ⋅ Clatham95 ⋅ r/ehlersdanlos
We had a book dedicated to us, Iron Flame by Rebecca Yarros. I read Forth Wing, it's very popular, and the second book just came out yesterday. The main character has EDS6mo ⋅ ruby0321 ⋅ r/ehlersdanlos
I diy'd some ring splints and they are helping a lot! Plus I think they turned out pretty 😁10mo ⋅ Socijart ⋅ r/ehlersdanlos
From needing a cane and custom braces, to an amateur kickboxer. AMA!1yr ⋅ PeteZiparti ⋅ r/ehlersdanlos
After a year of the worst health of my life, I placed in my age division at a race7mo ⋅ trinitysmile12 ⋅ r/ehlersdanlos
“Flare Up” - how it feels when my pain shoots for the stars, artwork done by hpdok (me)1yr ⋅ Hpdok ⋅ r/ehlersdanlos
“Invisible Illness”, a vulnerable illustration on how EDS & POTS affect me. 2023 is a year I’d like to dedicate to speaking out about my health. While our conditions are chronic, we can still be kind to ourselves by advocating for visibility in healthcare.1yr ⋅ renaart ⋅ r/ehlersdanlos
EDS strikes again! This morning I broke 2 of my favorite handmade mugs. Due to my wonky wrist I threw my phone at one and smacked the other with a pillow. I’m so bummed. Phone survived, so there’s that.6mo ⋅ Chandra_Nalaar ⋅ r/ehlersdanlos
finally submitted my PhD thesis in plant genetics (no extensions!) after learning to walk again thanks to EDS. 4 years and 150+ hospital appointments later, phew!3yr ⋅ feetpitbull ⋅ r/ehlersdanlos
For my super sensitive skinned EDS friends with tattoos on here: my first time using numbing cream went amazing!! Also Pls don’t hate on the tooth im very sensitive to the reactions i’ve been getting to it :’)1yr ⋅ Aggravating-Profile4 ⋅ r/ehlersdanlos
I made an EDS-related sticker! (I have cEDS myself) Thought y'all might find it interesting :)1yr ⋅ tiny-doe ⋅ r/ehlersdanlos
who knew such a tiny body part could cause such massive issues! here is my excised filum terminale for my occult tethered cord surgery! i am already able to pee easier and my legs feel sturdier than ever. it’s been about 72 hours and i am doing very well!1mo ⋅ marissansan ⋅ r/ehlersdanlos
I see pillows recommended a lot for pain-- may I introduce my pain relief pillows?1yr ⋅ veruveru7 ⋅ r/ehlersdanlos
How did I deal with being a zebra? Why, by imagining a race of legendary EDS people and writing a book about them, of course! Here's my cover~3yr ⋅ [deleted] ⋅ r/ehlersdanlos
Does anyone else always seem to have cuts and hangnails on their fingers? Any little scratch is going to tear and bleed, and my cuticles refuse to stay attached!1yr ⋅ hella_cious ⋅ r/ehlersdanlos
when you need a 24hr ECG for your hEDS, but your hEDS makes you react to the adhesive😐3mo ⋅ that1reddituserinnit ⋅ r/ehlersdanlos
Anyone else remember being little and thinking is what they meant when they said don't lock your knees because you didn't know about EDS or hypermobility?2yr ⋅ flawedtoflawless ⋅ r/ehlersdanlos
Found this pain chart and thought it was a good one. It seems doctors respond more to function issues rather than only pain.2yr ⋅ jlovelysoul ⋅ r/ehlersdanlos
Success day: yesterday, after 6+ years of training, I was awarded my brown belt in BJJ.3mo ⋅ iammandalore ⋅ r/ehlersdanlos
happy rare disease day everyone! :) here’s a little piece i did with one of my x-rays1yr ⋅ juniperbug123 ⋅ r/ehlersdanlos
Made this embroidery piece just in case able bodied people don’t know 🤷♀️4yr ⋅ _lofticries ⋅ r/ehlersdanlos
Sigh unfortunately I am pretty sure I know what this means. He sits like this all the time and I have to tell him to stop.2yr ⋅ GuesAgn ⋅ r/ehlersdanlos
Gigi Robinson, Sports Illustrated's Newest Swimsuit Model, Is Also a Chronic Pain Advocate2yr ⋅ kevshp ⋅ r/ehlersdanlos
Making people feel better about their fading tan one glowing forearm at a time2yr ⋅ the-limbic-system ⋅ r/ehlersdanlos
swan neck splits are 100% worth it. if you’ve been thinking about getting them do, as u can see in the pic they make a big difference1yr ⋅ HousingTime ⋅ r/ehlersdanlos
Anyone else look just about like this? Bruised and mottled all the time over here.1yr ⋅ georgiapeach90 ⋅ r/ehlersdanlos
What happened with this research? They said they’d follow up in six months and it’s been over a year.1yr ⋅ Silver_Log8381 ⋅ r/ehlersdanlos
Torn meniscus finally flipped into the joint space and knee is locked. Good thing I have an expert on hand.1yr ⋅ candyfoxlovescandy ⋅ r/ehlersdanlos
I don’t know about you guys, but this was the only thing in phys ed that I excelled in.4yr ⋅ genuinenothings ⋅ r/ehlersdanlos
I bought this weighted pillow for nausea and anxiety — it’s a game changer 2mo ⋅ hoalbqn ⋅ r/ehlersdanlos
Anyone else’s nails do this when they catch them on anything i.e. clothes?9mo ⋅ _FreddieLovesDelilah ⋅ r/ehlersdanlos
u/slothurknee because you asked to see a visual difference between “normal” and “EDS” grips4yr ⋅ TonChouChou ⋅ r/ehlersdanlos
Scale of pain - The guy in the fourth position is so insanely relatable to me it's not even funny5mo ⋅ JayPGPF ⋅ r/ehlersdanlos
Very bored as I have to be lying flat all day anyone got any funny stories or like cat pictures ect1wk ⋅ Alex8831 ⋅ r/ehlersdanlos