For the first time since my diagnosis 6 years ago my Iron, Iron Binding Capacity and Iron Saturation were in range. I cried a little1yr ⋅ tooth10 ⋅ r/Hemochromatosis
After 7 weeks of weekly phlebotomy’s, my levels are finally going down!11mo ⋅ pillowtissue ⋅ r/Hemochromatosis
2600 Ferritin to maintenance (<50), 45 phlebs of 500+mL whole blood over 10 months. I post for those with questions of what to expect after diagnosis. Most difficult thing I've ever been through.2yr ⋅ No-Psychology-2563 ⋅ r/Hemochromatosis
(This gives me hope )What blood letting can to your hormone’s *study results *2yr ⋅ Weekly_Comfort_5739 ⋅ r/Hemochromatosis
M/24 I guess I’ve just joined the club. Any advice before I go see my doctor?2yr ⋅ NoahPKR ⋅ r/Hemochromatosis
Phlebs every 2 wks. Ferritin rollercoaster. Anyone else have these disappointing flare ups of ferritin? My diet doesn’t change that much.1yr ⋅ beegizzo ⋅ r/Hemochromatosis
Can someone interpret these results? 20 y/o male, leftmost (most recent) is after blood donation1yr ⋅ UnrelentingSTBFL ⋅ r/Hemochromatosis
35y Male. Insanely high Ferritin. Was supplementing with Vitamin C but stopped today. What are the next steps?1yr ⋅ TheAuthorBRPL ⋅ r/Hemochromatosis
It took a ton of tests to rule all else out but I have been officially diagnosed. It is rare to have the heterozygous version and info is hard to come by. Any heterozygous HH folks out there that can tell me differences between the two? Does it take longer or less to get the levels down etc?1yr ⋅ VladimirPoosTons ⋅ r/Hemochromatosis
High iron saturation but normal ferritin. My GP said everything was normal but I saw the note & now I’m confused. Should I be concerned? I have no symptoms & not on supplements... 🤔1yr ⋅ Valuable-Car4226 ⋅ r/Hemochromatosis
26 year old male. Labwork advice needed. Feel like I am on deaths doorstep everyday.1yr ⋅ WizardSleeveLoverr ⋅ r/Hemochromatosis
Does anyone have ferritin this high ( ≈ 2000 ng/ml)? What are your symptoms?3yr ⋅ OneDayAtInnisfree ⋅ r/Hemochromatosis
High Ferritin (545) but normal iron and inflammation? Could it be low T causing high Ferritin?3yr ⋅ Jeremy_outchea ⋅ r/Hemochromatosis
And that is down 1,177 points from 2 weeks ago. Getting closer to that 100 level goal4yr ⋅ tooth10 ⋅ r/Hemochromatosis
Need help with concerning recent bloodwork. 23 year old male.4yr ⋅ WizardSleeveLoverr ⋅ r/Hemochromatosis
Do I have hemochromatosis? One doc says yes. Another says no. Details in comments...5yr ⋅ throwaway63618379 ⋅ r/Hemochromatosis