IIH pain. I get crazy pain in this part of my head. Especially when I sit in a recline posture, lift any weights. Anyone else here gets sharp shooting pain in this part of the head ? How do you deal with it ?1wk ⋅ Shoddy-Rip66 ⋅ r/iih
Diagnosed March 2019. Vision deteriorated in less than 5 days last week and I wound up needing an emergency shunt placed on Wednesday PLUS 2 LPs and a lumbar drain. Feeling good today, tinnitus is virtually gone and my vision is slowly coming back.3yr ⋅ ResidentForehead22 ⋅ r/iih
I got this super awesome shirt off of Etsy. I also got a mug that says “it’s not just a headache” too.1yr ⋅ Morbid666malicious ⋅ r/iih
“Pan Porn” - I’m in a Reddit group where they share empties of beauty products but today I’ve emptied yet another acetazolamide bottle. Another day another dose of the Devilmox. 😂😖😅1yr ⋅ raytay_1 ⋅ r/iih
People with Cerebral Spinal Fluid (CSF) leaks seeing this news and realising we’re about to be harvested by the rich...2yr ⋅ moostunhappi ⋅ r/iih
I grabbed a drink for a friend at a local Starbucks and grabbed a bottle of water for myself and recoiled in disgust almost immediately. I am shook. It looked so innocent! Carbonation demons are everywhere! 😂2yr ⋅ winging_away ⋅ r/iih
Neck swelling, does anyone get it? Does anyone know what it is? My neck is always swollen in the circled area. It’s not tender to touch, but the muscle underneath feels sore and fatigued.1yr ⋅ nievesblanca ⋅ r/iih
After the pressure I've been having lately, I wish a dr. would say this to me.4yr ⋅ ilovethe_90s ⋅ r/iih
These are my symptoms, I think I’m gonna send this to my primary care doctor since I’m not the best at speaking how I feel.2mo ⋅ cherrywavesss57 ⋅ r/iih
Been diagnosed for about 8ish years now, first ever occular migraine. My vision looks like this picture and it's driving me nuts and making it hard to see. Had it earlier today, got it to go away for a few hours, and now it's back. Any advice how to get it to stop?1yr ⋅ ViolentQuiet23 ⋅ r/iih
Mirena .... I found this online and it caught my eye when someone in the comments on here said to google it 🤔🤔 I had Mirena 3x back to back to back... now i have IIH and it has RUINED MY LIFE!!! I take 1500mg 2x a day of Diamox which is a whole other topic in itself!!!4yr ⋅ DtorresJ ⋅ r/iih
got my mri results back, do they line up with typical iih symptoms? dr told me I have a very mild case because I don’t get bad headaches and haven’t lost any of my vision yet. He said he doesn’t want to prescribe Medicine at the moment bc he doesn’t think I need it. Does this sound normal?1yr ⋅ clickclack1001 ⋅ r/iih
