Not to brag but after battling for 7 months and doing over 600 infusions, my Mycobacterium Avium Complex is no longer growing in samples! Just wanted to share so others battling this nasty thing have hope too3yr ⋅ hill2518 ⋅ r/CysticFibrosis
Comic I made in December about my experience with CF, Trikafta, and mortality3yr ⋅ hellhound6 ⋅ r/CysticFibrosis
Finished my first Marathon! Having a chronic illness is HARD! Let’s take a second to encourage one another and celebrate each other’s accomplishments. Whether it’s running a marathon or making it out of bed this morning, comment your accomplishments / things you would like to achieve below!2yr ⋅ Still_figuringitout_ ⋅ r/CysticFibrosis
My childhood CF doctor passed today. He was a great man and very dedicated to his job.4yr ⋅ blacklisted320 ⋅ r/CysticFibrosis
Today I married the love of my life! Never give up hope, there’s someone out there for everyone, even you!5yr ⋅ ChompyTheGoat ⋅ r/CysticFibrosis
I can't even order a variety pack of Buble anymore because it includes Grapefruit...3mo ⋅ shatindle ⋅ r/CysticFibrosis
Thanks to Trikafta I've been able to finally make progress in my fitness goals. I can't be more grateful for this medication, I finally feel like a normal person.2yr ⋅ sable428 ⋅ r/CysticFibrosis
In January I made a post about marrying the love of my life. Early this morning, he lost his battle to Cystic Fibrosis. Breathe easy, Meade Temple.5yr ⋅ ChompyTheGoat ⋅ r/CysticFibrosis
When you’re admitted to a non-CF floor - Nurse: “I brought you your enzyme for dinner.”4yr ⋅ CorvidiaPex ⋅ r/CysticFibrosis
Things have really changed since trikafta was made. I use to cough non stop and could barely exercise. Now my pft is 67 and I've been exercising like crazy. Not to mention this monarch vest gives me the freedom to move around. I hope everyone's lives and health have improved too.3yr ⋅ manofregret ⋅ r/CysticFibrosis
19 years of hell, might become not so bad after all. This is day one.3yr ⋅ Copernicus1n ⋅ r/CysticFibrosis
I can’t believe I’m typing this but thanks to Trikafta, I’m officially overweight! 🥰💚 30lbs and 26% pft gained within 3 months! I went from my lungs failing and being half dead, to the healthiest I’ve ever been within a quarter of a year. It’s just wild to even think about!4yr ⋅ karagore ⋅ r/CysticFibrosis
But also giving myself credit because “it is 100% easier not to do things than to do them”3yr ⋅ emmalou014 ⋅ r/CysticFibrosis
I was sobbing after reading this. Finally I might have a normal life... the idea of it is... honestly I’m at a loss of words2yr ⋅ FeelingCatFur ⋅ r/CysticFibrosis
Well I did my best, I quarantined for 3 weeks but it seems fate wills it so. Here I am about to get triaged in my car. It has been scary and I’ve been crazy nervous and on edge, but with that said I’m doing ok. Surround yourself (virtually) with loved ones.4yr ⋅ savagedrandy ⋅ r/CysticFibrosis
cross post because this is just a great point for most “invisible” illnesses.3yr ⋅ shellimonster ⋅ r/CysticFibrosis
I have always struggled with pseudomonas, and getting the proper antibiotics when I have an infection. This is from my most recent culture.2yr ⋅ blacklisted320 ⋅ r/CysticFibrosis
When I get asked what I want to do with my life now that CF has an effective treatment.4yr ⋅ GRAEYgoo ⋅ r/CysticFibrosis
Vertex is trying to take away my Trikafta access. Please share, publicity might help them care!3yr ⋅ grainfarmer_s780 ⋅ r/CysticFibrosis
Embody for me everything that offends this 37 year old, home owning, married, careered adult who is still forced to attend a pediatric clinic. Someone actually hand wrote this shit.1yr ⋅ Aodhanloki ⋅ r/CysticFibrosis
After asking for your help almost 2 years ago, we're engaged! (Story in comments)2yr ⋅ stumblingthrulife90 ⋅ r/CysticFibrosis
After fighting my company insurance for four months I finally got this yesterday!4yr ⋅ blacklisted320 ⋅ r/CysticFibrosis
It’s here!! I’ll post frequent updates to let you guys know how the process goes!4yr ⋅ skittle021 ⋅ r/CysticFibrosis
I’ve been wearing one every time I go to the clinic for 20 years, you’ll survive4yr ⋅ Goatsie12 ⋅ r/CysticFibrosis
When you get a free Fitbit for having CF lmao. University of Washington CF Clinic, you absolute Chads. 🤣2yr ⋅ LolaIlexa ⋅ r/CysticFibrosis
Nonsense like this is why my medical issues were always made abundantly clear at school1yr ⋅ sarahsaltonstall ⋅ r/CysticFibrosis
Hey guys, do you think my girlfriend with CF (ΔF508) will like this? I'm currently up to 21 origami roses, so I'm not done yet. She recently moved away quite far and I was thinking of sending her a parcel with sweets and other goodies in it. Do you think this could be something I could send her?3yr ⋅ Interihel ⋅ r/CysticFibrosis
[Update]Covid Round 2: Electric Boogaloo (or how I am still short of breath but overall pretty decent)4yr ⋅ savagedrandy ⋅ r/CysticFibrosis
Just got his PICC removed yesterday Eve and he has his first NEBB machine coming home when we're released.4yr ⋅ GrotesqueButcher ⋅ r/CysticFibrosis
I feel like there's some kind of joke here about missing enzymes and volcanic consequences3yr ⋅ Shoot_For_The_MD ⋅ r/CysticFibrosis
This is one place I can talk about how lonely being a CF mom is, without my friends or family seeing it and freaking out . I recently went part time to be with my daughter more , and it’s the first time since I was 13 I haven’t worked full time .3yr ⋅ Momma-meltothebox ⋅ r/CysticFibrosis
I’m in the hospital so I thought I’d make this meme since I won’t be sleeping5yr ⋅ lasagnapapa ⋅ r/CysticFibrosis
For those of you who play guitar, those hooks also work for nebulizers!3yr ⋅ jaxtnh ⋅ r/CysticFibrosis
Follow up from my first post about CF wrestling. I just got done with my second meet and I got first place in my weight class. One handed and chronic illness🤩😎4yr ⋅ AnimeStuffs ⋅ r/CysticFibrosis
First main meal on admission. Anyone else get servings this big? Or are they trying to tell me I’m too skinny? Was hard work!1yr ⋅ JmeMc ⋅ r/CysticFibrosis
My friend why are you so tired all the time? Just lie in. Me:3yr ⋅ -Eternal-Student- ⋅ r/CysticFibrosis
5 months on Kaftrio. Started hill running every week, and now fitter than I’ve ever been. Never thought this would how I’d spend my late 20s!3yr ⋅ Al1_1040 ⋅ r/CysticFibrosis
Is it covid? Is it the flu? Is it smoke inhalation? Is it just cf? Only time will tell.3yr ⋅ smilez4milezx3 ⋅ r/CysticFibrosis
First visit since trikafta. Had a really bad exacerbation that left me at 34% in February, started trikafta and a round of steroids and blew 61% and gained 8#.4yr ⋅ blacklisted320 ⋅ r/CysticFibrosis
Are the lungs of those with Cystic Fibrosis a hostile environment for COVID-19?1yr ⋅ Vegeta91588 ⋅ r/CysticFibrosis
So annoying. Like I'm not already hyper-aware of my coughing? Like they are suffering from it more than I am? MYOB5yr ⋅ rnimmer ⋅ r/CysticFibrosis
