Major bloating even in remission

3mo ⋅ ⋅

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Living life on the edge as a Crohnie. Few sips of cola on a Saturday afternoon.

1yr ⋅

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I like to call her my Prep Pie. Saddest pie I’ve ever made. Y’all know what I’m doing all night.

4yr ⋅

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“Toilet Pulling” - a sketch from a time when I rarely ventured far from my porcelain throne and yet I would still feel it dragging behind me everywhere I went.

2yr ⋅

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My small fighter has unlocked his first surgery achievement - now the proud owner of a central line.

4yr ⋅

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Post op after ileum resection. Feelin good

3yr ⋅

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last infusion before my first resection on Tuesday and possible ileostomy, i say possible bc i’m just praying when he opens me up he’s able to reconnect no problems. excuse my nails been trying to remove them before surgery 🤣. pretty anxious though not looking forward to hospital stay or pain

3yr ⋅

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I need this cake for my birthday

4yr ⋅

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Our little warrior princess Sydney just got wheeled back for her surgery!! 🤞🤞🤞

3yr ⋅

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My holy grails during a flare - What are yours?

1yr ⋅

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shoutout to crohns for all the cavities and cool sunglasses

2yr ⋅

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NG tube is OUT. Still healing and at high risk for infection but everything is moving along very well from last time. Thanks for all the positive messages in the last post ❤️ It really means a lot.

2yr ⋅

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To all my Crohn’s warriors out there, no doubt about it, there are many ups and downs with this disease. Remember there is so much courage and support in these pages. My goal is to eventually go back to flying, I’m a flight attendant by trade. On TPN, waiting on Gattex. Carpe Diem!

5yr ⋅

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Successful surgery. Took longer than expected 5 hrs. Was in recovery room 4 hrs. Pain comes and goes. But pain meds help until they run out. Hopefully can recover quick.

3yr ⋅

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Have to sit through my entyvio infusions solo because Covid , so I brought along an emotional support bunny

3yr ⋅

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Had a whole in my small intestine and went to emergency surgery today, but I made it through and have never been more happy to be in pain!

2yr ⋅

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First Remicade infusion. Praying it gets me in remission 💜 Tired of being tired and sick.

2yr ⋅

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Getting my first Remicade infusion today! Diagnosed last month.

2yr ⋅

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I am my colostomy bag. REST IN PEACE Seven Charles

5yr ⋅

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Remicade day :)

2yr ⋅

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Remicade Infusion number ??? (lost count...) Celebrating 8 years of remission!

4yr ⋅

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I am an art major and I make collage paintings, usually with no particular theme, but this time I did a Crohn's themed one. Tried not to make it too dark lol. I don't know if I can post this kind of thing here but I thought my fellow IBD'ers might appreciate it ❤️ hope you all are well

4yr ⋅

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NG Tube finally got pulled! 13 whole days with it in sucked. Now hopefully discharged in a few days.

3yr ⋅

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I remember being in high school the first time I got sick. Missed over 40 days junior year and took many ER trips. It took 7 years for anyone to listen to me. 11 years later, I’m on a new journey. Starting Stelara today and hoping for positive results. I may have Crohn’s but Crohn’s doesn’t have me.

3yr ⋅

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I really wish there were an easier way. IYKYK :(

5mo ⋅

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Lil update, it'll be a quick one as I'm currently tired...anyways, 3rd day post op and I just had my first poop, feels great ! 😅 I want to thanks everyone of you again my chronies for your wonderful support, I'm not allowed visitors right now cause of covid and you've been so helpful ! Thanks 🙏

3yr ⋅

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Bad news this morning. Needed the NG tube again. So painful

3yr ⋅

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This made me laugh 😂

5yr ⋅

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It’s possible to recover! 14 years of malnourishment before surgery. Exactly 2 years and 55 lbs of difference!

4yr ⋅

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The infusion clinic had massaging/heating/reclining chairs. Best infusion so far.

3yr ⋅

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Of course I have my first hospitalization in 8 years during COVID-19...

4yr ⋅

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First Remicade infusion today - hoping for some luck after two other failed biologics 🤞

3yr ⋅

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First Remicade was infusion and with my new infusion hoodie - I thought I’d get premeds but I didn’t!?

1mo ⋅

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This rings true to me as I was woken up to poop again thinking how I should not have qte that damn cheese dip

3yr ⋅

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AFTER OVER A MONTH OF NO MEDICATION IN MY SYSTEM, IT'S HEEEEEEEERE!!!!!!

3yr ⋅

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First Remicade infusion after failing Humira. Remission, here I come 💪

3yr ⋅

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Carved my first pumpkin today. It's not much, but it's honest work

4yr ⋅

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Finally did it Crohnies, I finally installed that Bidet I've wanted for years. Took less than 4 minutes.

4yr ⋅

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Taking it right back to where it all began

1yr ⋅

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So true.

5yr ⋅

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Just had my stoma fitted. It feels like my insides have been rearranged. Hopefully the road to recovery is quick

3yr ⋅

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USB heating pads 🥹

1yr ⋅

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Never have I identified with a bumper sticker more.

3yr ⋅

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Mood = Fuck Crohn’s, fuck bowel blockages. Wish me luck, friends. 🙏🏻✌🏻💚

4yr ⋅

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Promised to keep you guys updated, so here it is. ileocecal resection has been completed!

4yr ⋅

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Finally got my Crohn’s Tattoo. Hoping for remission after my colonoscopy tomorrow.

3yr ⋅

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Wanted to share some positivity! A month ago I was at 116lbs at 5’8’’. Now im in remission and feeling better at 130lbs. Hopefully will be at 150lbs soon. It is possible! Love you guys!

4yr ⋅

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Anyone else’s pup know when your flaring?

1yr ⋅

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'sup fellow chronies ! Waiting for my first resection in a couple hours. Also, first time ever doing any kind of surgery...goodbye fistula !

3yr ⋅

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First colonoscopy & endoscopy- wish me luck!

3yr ⋅

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19 years with Crohn’s, first time hospitalized because of it. Here’s to hoping I don’t need surgery!

3yr ⋅

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Remicade infusions are made better with Stardew Valley! 🧑🏼‍🌾

2yr ⋅

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It’s my birthday and my friend made me 6 new bag covers for my ileostomy bag! So happy right now!!

3yr ⋅

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My Shits and Giggles starter pack.

3yr ⋅

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Just had an ileum resection and the operation went well!

4yr ⋅

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Everything went well ! I'm sorry I don't have the strenght to answer all of you right now as I just stood up for the first Time since the procedure and it took all I had, but I wanted to thank everyone for your kind words and support ! You're best my crohnies 😘

3yr ⋅

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Peace with our reality.

2yr ⋅

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Really going Through It today, but luckily my bathroom buddy is here to keep me company!

3yr ⋅

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Under sink toilet in ER room

1yr ⋅

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About that time again 😅

3mo ⋅

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Had my first surgery today since getting diagnosed at 13 (now 22) laparoscopic ileocecectomy, went extremely well should be going home tomorrow

3yr ⋅

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Great piece in a national newspaper today from Colostomy UK

2yr ⋅

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first normal hgb in 6 months ❤️🥹

1yr ⋅

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It's that time again...

4yr ⋅

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Just woke up from a bowel resection with a bonus new ileostomy. Status: optimistic, nervous, morphine'd out of my skull.

4yr ⋅

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We’re not dead yet, folks

4yr ⋅

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pre injection selfie. wish you a happy weekend

3yr ⋅

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First remicade infusion today. Been pretty nervous. All the nurses cute tho

2yr ⋅

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My cat, Tuna, comforting me. Doctor told me humira stopped working due to antibodies

2yr ⋅

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2 yo w/CD Remicade week 2: blew the first vein 😭but got one in the hand. No real changes in stool yet but hopefully soon 🙏🏼

3yr ⋅

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did y'all ever receive one of these when you were diagnosed?

1yr ⋅

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Infliximab 💯👏

2wk ⋅

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The irony of Kanye shaming Kim while also liberating so many of us from our potty shame. If Kim K has watery stools, so can we.

1yr ⋅

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Congrats to my bf who will [for the first time tonight] have the lovely opportunity to see me shit my brains out on bowel prep

3yr ⋅

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Rant of the day🤣. Developed antibodies to Humira & my joints are suffering because of it now. Everything was perfect until it wasn’t.

1yr ⋅

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I figured some of you might appreciate this as well! I have had Crohn's since age 8, but got an ostomy this past year!

4yr ⋅

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That isn't really how this works

1mo ⋅

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Joined the Stelara fam today. Was not looking forward to visiting the hospital during this mess, but every thing went well

4yr ⋅

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World's worst Milkshake & probably one of the most expensive, too.

6mo ⋅

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Me: *eats a ton of unhealthy food with extra hot sauce* Also me: *poops blood*

5yr ⋅

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Can’t wait to go pick up my meth! 😂

4yr ⋅

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3 weeks from Monday

4yr ⋅

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anyone else have an in tune pet when feeling terrible? so grateful for mine

2yr ⋅

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Calmoseptine , who ever recommended this bless ur heart . My butt feels minty fresh and protected 😂😂😂much appreciated!

1yr ⋅

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Hi all, first time post here.. Any way, back in the hospital with 4 abcesses and a fistula. 🥲

3yr ⋅

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First bowel resection!

1yr ⋅

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After 4 years, a little hope from me to you.

5yr ⋅

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I always try to dress appropriately for infusions.

5yr ⋅

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Covid-19 Guide from Crohn's and Colitis UK. Stay safe folks

4yr ⋅

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So nobody told me I looked like this on prednisone huh. Ridiculous.

2yr ⋅

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A new start

1yr ⋅

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today was a bit of a rough patch. had a couple of side spasms. Caused a bit of fear but an ab binder definitely helped to stabilize the tummy area

3yr ⋅

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Proud to be back in school after 7 surgeries in the last year, but even more proud of my battle scars :)

2yr ⋅

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In honor of being able to eat again after a month (and cake day!) a cake pop! Thanks for all the support!

5yr ⋅

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colonoscopy #4 down 🥳

3yr ⋅

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First Remicade infusion. Cautiously optimistic. Wish me luck!

2yr ⋅

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Still have the NG tube but finally had a good bowel movement today. I’ve been doing my 5-6 15-20 minute walks a day. Today I’ve done 5 walks so far want to do 2 more tonight. Can’t wait to get rid of this NG tube again and be able to eat and drink.. soooo hungry

3yr ⋅

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Sup my Crohnie Homies? Remicaid wasn't cutting it so today we try Humira. Never given myself a shot before. Today I have to do 4 of these MFs my first go.

2yr ⋅

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Owning up :) I had my first shot of Humira (Adfrar in India) after nearly 3 years. I am due for another 2 shots this year on a periodical basis. Channeling all my positive energy for a speedy recovery 🙏

4yr ⋅

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October 2017 vs October 2018; I've come a LONG way.

5yr ⋅

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Surgery in 12 hours. Early tomorrow morning! Been here 10 days already. Ugh just wana go home.

3yr ⋅

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Since getting Crohn's my weight has been all over the place, one minute malnourished, the next over weight but since I found a treatment that works I've been able to take control and lose the excess weight :D 13kg down and finally in the healthy range 😁

3yr ⋅

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This.

5yr ⋅

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Me and my sister at the museum after getting diagnosed, was on modulen.

4yr ⋅

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AMA: I have been on Remicade consistently for 16 years and in remission for the majority of that time. Getting an infusion now

3yr ⋅

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I hate using public restrooms...

5yr ⋅

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Rinvoq is working after 5 biologics, high dose steroids and immunosuppressants didn’t (fecal calprotectin)

2mo ⋅

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People have their dogs with them, I got my bird with me

3yr ⋅

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Today I’m celebrating my first crohns admission 😑

2yr ⋅

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First Stelara Infusion!! Initial calprotectin was 3466, let’s see how it goes 🤞🏻

2yr ⋅

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What a hell of a year. If it wasn't for the life saving actions of the NHS and it's staff my son and I would not be alive to celebrate our first Christmas together!

4yr ⋅

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Was sick of paying $7 for Rao’s sensitive marinara, was shocked to see this today!

1yr ⋅

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Heard that resection doesnt count Unless you post a post-surgery selfie so here I am

3yr ⋅

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Officially a member of the Stelara club! Fortunate enough to have a home health infusion too, which really helps with anxiety!

1yr ⋅

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Finished a full plate of food when out with friends for the first time in months... Excited enough to share.

5yr ⋅

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only thing i’ve been able to stomach without feeling incredibly nauseous :)

3mo ⋅

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Bottoms up. Happy Friday!

2mo ⋅

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Ok, this stuff is AWFUL.

1yr ⋅

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Had to leave work bc pain. At least I have cuddle bois.

2yr ⋅

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post resection selfie! update in the comments below!

2yr ⋅

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My FB Crohns Disease Support Group muted me with no warning after I posted a meme. So I’ll post here for people who actually appreciate them instead.

4yr ⋅

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First skyrizi infusion! Wish me luck guys!

1yr ⋅

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Infusion day!

3yr ⋅

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Getting my first Remicade infusion today.

3yr ⋅

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I'm not ok with the notion that people with underlying conditions are somehow disposable, so I designed a t-shirt about it (question in comments)

4yr ⋅

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Tomorrow’s prep day. Any suggestions?

2yr ⋅

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in th immortal words of Samuel L. Jackson, Hold on to your butts!.

1yr ⋅

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My alternative to popcorn

1yr ⋅

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Starting to feel better little by little. So far I've been able to pee on my own, now I just have to wait until I can fart and poop, then I can finally go home! (Day 3 at the Hospital)

3yr ⋅

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Day 2 of resection #2. Here’s to hoping stelara makes it my last!

4yr ⋅

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My ostomy scar healing progression after laparoscopic total colectomy (Description in comments)

1yr ⋅

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After a fruitless 1.5 years with Stelara it’s time to try something different. First Remicade infusion today!

2yr ⋅

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Unconventional Wet Media project, 22 by 30, made with resin and ash from my bong that I use to smoke marijuana.

3yr ⋅

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Getting my ileum removed today! So excited to be free of all these structures and scar tissue

3yr ⋅

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infusion days suck... but starbies + hallmark movies make it a little better :)

1yr ⋅

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ROID RAAAAGE!!!!

4mo ⋅

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Remicade for me in a nutshell

3yr ⋅

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Full Remission!!!

3yr ⋅

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