BREAKING: Senator Bernie Sanders drafts proposal for Long Covid Moonshot.2wk ⋅ soysauce44 ⋅ r/covidlonghaulers
The lack of urgency in finding Long COVID treatments is FRONT PAGE NEWS.2mo ⋅ soysauce44 ⋅ r/covidlonghaulers
My sweet husband and I now both have long-COVID and take turns taking care of each other during flareups. Almost every single day is a struggle. We are the faces of long-COVID1yr ⋅ Dread_Pirate_Jack ⋅ r/covidlonghaulers
identifying way too much with this lamp, thought we might need a laugh1yr ⋅ thaw4188 ⋅ r/covidlonghaulers
1 month without seizures, reached 3k steps this month, heart palpitations have subsided, not dizzy 24/7 anymore. I was able to get pretty and enjoy sunsets to the fullest and relax without feeling like I’m dying. I still have a long way to go but I wanted to celebrate this and give you all hope 💖1yr ⋅ PinkPlantjuice ⋅ r/covidlonghaulers
Today starts my Yale trial of 18 days of paxlovid (or placebo)3mo ⋅ Prestigious_Wait3813 ⋅ r/covidlonghaulers
Oncologists mock immune compromised people disabled by long Covid1yr ⋅ AnnTipathy ⋅ r/covidlonghaulers
Made an acrylic painting based on my experience of all this hell. It took me 8 months to finish this because there were days where I was too sick to even lift up a brush. Today, I am having a good day & Wanted to share this with you all. Out of bad situations can come a lot of good things & wisdom.1yr ⋅ PinkPlantjuice ⋅ r/covidlonghaulers
To other people this may seem a silly post but to me it’s a huge win. I baked an entire Banana cake from scratch all by myself without feeling terrible. I was bedbound last yr. I’m getting stronger 💛 sharing my strength with you all ✨1yr ⋅ PinkPlantjuice ⋅ r/covidlonghaulers
Two year update. Only you guys know how difficult this journey is. I’m walking longer distances & even starting to jog for a few seconds. Even though I lost everything I am happier & grateful for this second chance. I live with love as long as life wants me to💖3mo ⋅ PinkPlantjuice ⋅ r/covidlonghaulers
I unfortunately feel like this is how uninformed people view this plight.3mo ⋅ keepingitrare ⋅ r/covidlonghaulers
“CoViD iS MiLd” 🤡 ~ this subreddit will explode the next couple of months. The media and the world can’t ignore it forever!!!1yr ⋅ Albax94 ⋅ r/covidlonghaulers
First UK billboard up promoting @NotRecovered and advocating for clinical trials for Long Covid and ME/CFS.6mo ⋅ Aggressive-Toe9807 ⋅ r/covidlonghaulers
It's actually people who are failing us, much more than the virus1yr ⋅ AnxiousTargaryen ⋅ r/covidlonghaulers
Seeing this post get this much attention outside of this sub is amazing.1yr ⋅ Flangers ⋅ r/covidlonghaulers
Yesterday I was told “you’ll feel better once the weather gets warmer” 🙂 2d ⋅ Hollychanel ⋅ r/covidlonghaulers
The dizziness and brain fog make it unbearable to go pretty much anywhere, so I haven’t been to a large store for like four months. But here I am, at world market with my wife today! I know its silly to be proud about doing something as normal as being at a store, but this is an accomplishment!2yr ⋅ tandyman234 ⋅ r/covidlonghaulers
Fans holding up signs for ME/CFS at a FC Nuremberg football game. This is a good idea for advocacy!1yr ⋅ Aggressive-Toe9807 ⋅ r/covidlonghaulers
Call Congress for your life and ask for Long Covid Funding Moonshot6mo ⋅ Limoncel-lo ⋅ r/covidlonghaulers
I graduated today Summa Cum Laude while suffering with long haul covid2yr ⋅ blobbyfishboy ⋅ r/covidlonghaulers
This is how you build trust between patients and healthcare professionals.8mo ⋅ zb0t1 ⋅ r/covidlonghaulers
Burning Itching hives for over a year. Antihistamines and DAOs do very little. It's not fun to be alive anymore. Crawling in my skin.1yr ⋅ Negative_Mancey ⋅ r/covidlonghaulers
2nd Update: 8 months LH and Dysautonomia/minimal Pots is all I have left. I was able to walk into three stores today and not be exhausted after being home bound & with ataxia for the longest. I’m still here to inspire, celebrate, and give you all hope!1yr ⋅ PinkPlantjuice ⋅ r/covidlonghaulers
It’s my birthday today and although I’m not 100% fine, I am so grateful to be here despite being broken. I’ve learned to cultivate happiness with the ones I love through suffering and live as if it’s the last day. Having Peace, love and being in the moment is the greatest gift I can ever ask for 💖11mo ⋅ PinkPlantjuice ⋅ r/covidlonghaulers
Got a hateful reply on a comment by a Long COVID denier. At this point I am not even phased but jeez....1yr ⋅ a_inaara ⋅ r/covidlonghaulers
Long covid showed us who actually cared and who didn’t2yr ⋅ Mysterious-Current47 ⋅ r/covidlonghaulers
Finally feeling well enough yesterday to fly down to see my mom for Thanksgiving. I hadn’t been able to see her in almost a year and I’m feeling so grateful.5mo ⋅ jetsetmike ⋅ r/covidlonghaulers
LC going mainstream: new Guardian series on Long Covid1yr ⋅ Antique_Watercress99 ⋅ r/covidlonghaulers
officially hit my one year anniversary of infection and one year of POTS 🥲 I celebrated by laying in bed after using all my energy to shower and put minimal makeup on 🙃1yr ⋅ Pristine-Calendar-54 ⋅ r/covidlonghaulers
Long timer checking in. A while ago I posted about moving to a house instead of an apartment, from when at my worst being bedridden (my postcovid were cardiovascular issues), today I've cropped the previously huge tree to the right and cut out the branches worth making firewood out of. Zero issues.1yr ⋅ namnbyte ⋅ r/covidlonghaulers
My 21 yr old son has had 8 months of the worst long COVID experience imaginable. Pacemaker, Dysautonomia, bedridden, seizure, 100% debilitating brain fog, constant DPDR...does it EVER STOP or is this PERMANENT BRAIN DAMAGE??? The truth please...1yr ⋅ Adventurous_Dish4605 ⋅ r/covidlonghaulers
I couldn't walk for 5 mins 1 year ago, here is me doing 30 min walks in a local field, never give up.1yr ⋅ freakyteaky89 ⋅ r/covidlonghaulers
Some Long COVID facts to keep in mind as you watch the senate hearing today.3mo ⋅ soysauce44 ⋅ r/covidlonghaulers
I took me losing my health to realise I didn’t have any real friends.1yr ⋅ lil_tig ⋅ r/covidlonghaulers
This is my beautiful fiance. She got covid in Dec 2019. She's a long hauler who's had the worst of the worst happen to her but here she is with a smile. Keep pushing.2yr ⋅ shraf2k ⋅ r/covidlonghaulers
Does anyone else get headaches in this part of the head ? How are you managing the pain ?1mo ⋅ Shoddy-Rip66 ⋅ r/covidlonghaulers
Another morning waking up not miraculously recovered. Let’s just get through today. Again.1yr ⋅ Cautious_Ad6850 ⋅ r/covidlonghaulers
Join us in calling the CDC: demand they roll back their 1-day COVID isolation guidance!1mo ⋅ soysauce44 ⋅ r/covidlonghaulers
9 months in - well enough to slowly do the sport I love again1yr ⋅ RevolutionNo1562 ⋅ r/covidlonghaulers
A kind stranger in my neighborhood brought me food and dishes after I made a post in the local but nothing group asking for dishware so I can prep meals due to my fatigue. There are some kind people out in the world!7mo ⋅ Umnsstudennt ⋅ r/covidlonghaulers
I don’t even think I could’ve imagined the place I am now 5 years ago2mo ⋅ PhrygianSounds ⋅ r/covidlonghaulers
World Health Organisation sponsored ad on Facebook about Long Covid1yr ⋅ fckiforgotmypassword ⋅ r/covidlonghaulers
The doctor at the long covid clinic you waited 7 months to get into1yr ⋅ CourageIslandGame ⋅ r/covidlonghaulers
My ex killed himself on our anniversary yesterday and I am struggling...9mo ⋅ Omeaga10 ⋅ r/covidlonghaulers
Society forgot what long term effects Polio had on people, lot of parallels to long covid it seems1mo ⋅ imahugemoron ⋅ r/covidlonghaulers
It's been a year. And since saying I have Long COVID means nothing to most people, I made this calling card. As way of filling in my friends, family, acquaintances on what's going on with me, should they ask. It also makes clear why I won't be dropping precautions anytime soon.8mo ⋅ peop1 ⋅ r/covidlonghaulers
More ammo to show to your gaslighting doctors, just in case. Use it unsparingly.2yr ⋅ zb0t1 ⋅ r/covidlonghaulers
What it feels like mentioning the possibility of long COVID to anyone having new medical problems.1yr ⋅ imahugemoron ⋅ r/covidlonghaulers
It's beyond time we get some serious funding for Long COVID research!2mo ⋅ soysauce44 ⋅ r/covidlonghaulers
Adam Devine’s health issues... anything sound familiar to anyone here?4mo ⋅ CLHPAX ⋅ r/covidlonghaulers
16 months in, 80% feeling better. celebrating that After 8 months of Physical Therapy Levine protocol, I just walked my first 2 hour hike. I couldn’t stand for even 5 mins at the beginning of my LH! Please listen to your body however because of PEM and other things.9mo ⋅ PinkPlantjuice ⋅ r/covidlonghaulers
4 years ago today we had no idea our lives would change so much from this awful virus1mo ⋅ Cortneykathleen ⋅ r/covidlonghaulers
Step back if you have to. From treatments, from research papers, from tracking your personal hell in fine detail. Rest also means allowing yourself to just be. Without expectations. The work on LC will continue without you, I promise you that. If you feel you can't go on, rest. Do not quit.1yr ⋅ peop1 ⋅ r/covidlonghaulers
There Is No Such Thing As Long Covid . This clown had to spread this bs on Long Covid Awareness day.1mo ⋅ Psycho_Duck_01 ⋅ r/covidlonghaulers
just for today, long covid lost. i went to the beach and had a great time ☺️ 3wk ⋅ xenuInvasion ⋅ r/covidlonghaulers
Throwback to when my buddies pushed me around in a cart in Walmart (me on the left)2mo ⋅ romans310 ⋅ r/covidlonghaulers
My partner and I are simultaneously dealing with Long Covid. Our “recovery wall” of stories from this sub keeps us going. 👊1yr ⋅ ____JLS ⋅ r/covidlonghaulers
Nothing to see here, just the Spanish economy falling apart.1yr ⋅ Aggressive-Toe9807 ⋅ r/covidlonghaulers
After 11 months of hauling I’m back to body weight training. Exercise helps with the PTSD. There’s hope everyone.1yr ⋅ WTPTRAINEE ⋅ r/covidlonghaulers
Kings College in London working on identifying autoantibodies and hopefully starting trials to replicate/treat them.1yr ⋅ Aggressive-Toe9807 ⋅ r/covidlonghaulers
Putting up some new Long COVID billboards across California next week! Trying to keep up the political pressure to get us TREATMENT.3mo ⋅ soysauce44 ⋅ r/covidlonghaulers
Every doctors solution to exercise intolerance is.....drumroll........exercise.1yr ⋅ buchacats2 ⋅ r/covidlonghaulers
Such a jolt of panic seeing a headline like this: 'Long COVID patients are quite possibly experiencing the early stages of neurodegeneration.'9mo ⋅ geo_jam ⋅ r/covidlonghaulers
Why don't you try this supplement/ acupuncture/ HBOT/ ozone therapy?7mo ⋅ BuffGuy716 ⋅ r/covidlonghaulers
Made this for those who will inevitably come at me with but the WHO said.... Yeah, I know they did. Let's face it, no one ever bothers to read the links we send them, so here's a one-page summary. Who knows if it might not pique some of those skeptics' curiosity.1yr ⋅ aQuiMieuxMieux ⋅ r/covidlonghaulers
I described how LH feels in midjourney AI and it made me this.1yr ⋅ Serious_Structure964 ⋅ r/covidlonghaulers
Chronic illness feels like a fever dream at times😵💫no one can hear me scream. So thankful for all of you guys:)1yr ⋅ lo_jeane ⋅ r/covidlonghaulers
